Patient stories

“We were getting up in the night to give her ibuprofen and Pamol, and in the mornings she’d be limping and so tired she’d fall asleep on the couch.”

“Get help if you need it. And even though it’s hard, just try to take it one day at a time.”

“They did an X-ray, and all of a sudden the room was full, and the word cancer was spoken about.”

“I thought, ‘This can’t be right. Cancer – no, not me.’ I just couldn’t believe that I could have cancer.”

“You start reading about it online, and then you freak out, because it’s sort of saying you’ve got five years to live.”

“So many people could have quality of life with daratumumab, but it’s not funded. I know how lucky I am.”

“We just want to show our appreciation and give a little bit back, because the support we’ve received has been overwhelming.”

“I’d lost my brother to brain cancer seven years earlier. I couldn’t believe it was happening to me too.”

“Nicki from LBC has been with me from the very start. She’s been awesome.”

“It was splashed all over the paper, and I thought, ‘What’s all this fuss about?’ But it had been the biggest breakthrough in about 25 years, apparently. The best thing since sliced bread.”

“I actually found out about my diagnosis by the GP sending me a photo of a letter to take with me to the hospital, saying ‘possible leukaemia’."

“Max didn’t understand why Daddy was gone for a week every couple of weeks.”

“I just burst into tears, and I said, ‘Really? This isn’t going to kill me?’ And she said, ‘Not if you don’t let it.’”

“You know what? From 2020 onwards I have very little written in my diary, because you just know that some days are good, and some days are not so good, and that’s it, really.”